The Website You Need to Know

For those of us with MM in whatever stage, your number one website for up-to-date info and resources is International Myeloma Foundation.

My chapter in Mpls recently sent out info on a webinar that they held, and I will include a link to the slide show deck for you to view, but I am told it is also on the website.

In today’s COVID-19 climate, we all need to be extra careful and follow the guidelines of HEALTH PROFESSIONALS and not politicians. Do what is best for you and your family based on your diagnosis, that is the number one priority.

Stay safe out there, we all are relying on you to do so!

LWM_Covid19_041620 webinar



COVID-19 and the MM Community

It has been a very long time since I last posted, but now is a great time to share some info for those of us on the MM journey and how to protect ourselves and stay up on the COVID-19 threat.

Please follow the link and stay safe out there everyone.


The coronavirus is on the minds of global citizens and all myeloma patients. Dr. Joshua Richter shares an incredible amount of information for myeloma patients to navigate their care in these uncertain times. He shares drugs patients may want to ask their doctors about, considerations for stem cell transplant, the status of some myeloma clinical trials, tradeoffs of using IVIG, and potential therapies being used to treat the coronavirus. This is a must-read show to learn how the coronavirus is affecting myeloma patients and how they can be prepared.


Proteasome Inhibitors for Multiple Myeloma Treatment

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Proteasome inhibitors are a group of drugs that are mostly used in treatment of multiple myeloma. I think that brings an interesting concept to the field of cardio-oncology where we tend to focus a lot on the diagnosis of cardiotoxicity.

It’s important to mention that multiple myeloma patients tend to be patients with a lot of pre-existing cardiovascular risk factors. Today, screening for cardiovascular function or cardiac function informs whether doing an echocardiogram to assess left ventricular ejection fraction is or is not indicated for those receiving either bortezomib or carfilzomib, which are the two most commonly used proteasome inhibitors.

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March is Myeloma Action Month in Minnesota

March 4, 2019 will be designated “Myeloma Action Month” in the state of Minnesota as proclaimed by gov. Tim Walz.

I don’t know if this is unique to MN or if other states have done this or are doing it but it sure helps to shine a light on a form of cancer that most people don’t have a clue about or have ever heard about.

They are asking for as many people who are diagnosed as possible to show up at the gallery of the House of Representatives to be acknowledged and to put human faces around the disease, so look for me in the crowd and who knows, you may see me.

If you can’t be there, here is the official document about the proclamation.

02 26 19 Mn Gov Walz proclamation